ChristiewPCOS
March 30th
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"Welcome to my PCOS Blog" I'm Christie, 48, married to a much younger man and we have four dogs as our kids...

My personal crusade is to inform and educate women, men and the medical professionals on PCOS... Why? Knowledge is POWER! The info will save your life or someone you may or may not know...

PCOS is an endoctrine disorder affecting your whole body as a hormone imbalance...The PCOS symptoms wreak HAVOC through your entire body... Symptoms can be mild to extreme, one to numerous symptoms... You can be thin to obese...

My PCOS Journey started by a lingerie shop owner stating "You look like me"... We talked about PCOS a while...I kept mentally checking off all the symptoms she mentioned... My symptoms are mild, 28 of the 48 i found... I saw my doctor the next week, had a battery of tests done, researched everything i could find on PCOS... My diagnosis was PCOS, Metabolic Syndrome, Insulin Resistance (IR), Perimenopause, Hypertension, Rosacea and Preborderline Diabetes... My "Miracle Pill" is Glucophlage XR... On it i get thinner than when i was in 6th grade!

My blog posts are of info you need and should know...I urge you to pass the PCOS & Syndrome X word on... Yes, men get a version of PCOS called Syndrome X...

Feel free to email me privately...

Knowledge is POWER!
Christie

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Monday, March 26, 2007
PCOS + Symptoms, Tests, Websites.

 

PCOS

Symptoms, Tests, Websites, Forum


PCOS & LOCAH & THYROID Symptoms w/Websites

This list of symptoms and websites are beneficial for you to read over...
Some of you may have the symptoms or know a lady that does...A quick
indicator is those of us that carry their extra weight in the tummy and chin... (Thin women can have PCOS &/or LOCAH, too)... Copy this and check off your symptoms, also keep a master copy and be sure to pass this on...


READ ON...

Symptoms for PCOS and LOCAH compiled from sites, forums, groups, research,
etc...

PCOS - Polycystic Ovary Syndrome
LOCAH - Late Onset Congenital Adrenal Hyperplasia

SYMPTOMS...................PCOH.*.LOCAH.*.ME
---------------------------------------------------------------------
..........................pX = PCOS, lX = LOCAH, tX = THYROID

* Periods *
- absent................................pX.....lX............__
- irregular.............................pX.....lX....tX...__
- heavy, clots-golf balls........pX....................__
* Pregnancy *
- infertility............................pX.....lX............__
- trouble getting...................pX.....lX…........__
- miscarriages.......................pX.....lX..........__
* Hair *
- excessive............................pX.....lX............__
- thinning..............................pX…..lX............__
- facial..................................pX…...lX...........__
- pubic - early..................................lX............__
- zebra line- chest to belly...............lX............__
- oily hair..............................pX......lX……......__
* Weight *
- obesity................................pX......lX..............__
- hard to lose........................pX..............tX......__
- gain easy............................pX..............tX......__
- IR - Insulin Resistance........pX......lX...............__
- Metabolic Syndrome..........pX.......lX..............__
- fluid retention................................lX..............__
* Skin *
- acne...................................pX........lX..............__
- dark skin patches...............pX.........................__
     (ex: nape of neck) 
- skin tags.............................pX...........................__
- jaundice (yellowish)........................lX................__
- oily skin (excessive)...........pX.........lX.................__
- dry scalp.............................pX........lX.................__
- Rosacea..............................pX.............................__
* Cysts *
- ovaries...............................pX.............................__
- liver tumors.....................................lX.................__
- liver cancer......................................lX.................__
- kidney tumors..................................lX..................__
* Diabetes *
- Type II (2)..........................pX..........lX.................__
- Gestational........................pX..........lX..................__
* Cholesterol *
- high....................................pX..........lX..................__
- high LDL...........................................lX..................__
- low HDL............................................lX...................__
* Triglycerides *
- high....................................pX...........lX..................__
* Blood Pressure *
- high....................................pX...........lX..................__
* Misc.... *
- Hypertension......................pX..........lX..................__
- Stress.................................pX...........lX..................__
- Anxiety...............................pX..........lX..................__
- Panic Attacks...................................lX...................__
- Moodiness..........................pX..........lX....tX...........__
- severe...............................................lX...................__
- Heart Disease.....................pX..........lX..................__
- Hormone Disorder.............pX..........lX...................__
- Neurological stuff.............................lX..................__
- Depression..........................pX..........lX....tX..........__
- Hyperinsulinemia................pX...............................__
- excess Androgens..............................lX..................__
- Atherosclerosis..................................lX..................__
- Hormone Imbalances.........pX...........lX..................__
- low sex drive.....................pX............lX....tX...........__
- RLS-Restless Leg Syndrome...pX.............................__
- 21 Hydroxylase
    - deficiency.......................................lX…...............__
- 17 OHPS                                           
    - high - over 30 NG/DL....................lX...................__
- Total Testosterone, NG/DL
    - 59 is high, 40 is elevated................lX...................__
- UTI - Urinary Tract Infection..pX............................__
- enlarged clitoris..................................lX...................__
- deepened voice...................pX............lX..................__
- Endometrial Cancer..........pX.............lX..................__
- Endometrial Hyperplasia....................lX..................__
- Sleep Apnea........................pX............lX...................__
- Iron low..............................pX............lX...................__
- Calcium low.......................pX............lX....................__
- low B12..............................pX............lX....................__
- Ferritin level low...............pX.............lX...................__
   *add iron if under 100-150
* Menopausal *
- estrogen loss......................pX.............lX....................__
- hot flashes..........................pX....................................__
- skin thinning......................pX.....................................__
- elevated sensitivity.............pX.....................................__
- Cardio Disease...................pX.....................................__
- effects on bladder
    - negative.........................pX......................................__
- effects on vagina area
    - negative.........................pX......................................__
- reduction in bone density...pX......................................__
- Androgen levels high.........pX.......................................__
- poor lipid levels..................pX.......................................__
- Hormone Imbalances.........pX...............lX.....................__

Important info found in research as well...

Birth Control Pills lower all your hormones... If some are still high, you
could have PCOS &/or LOCAH... (per a research facility manager)

2/98 Cosmopolitan Magazine
article on PCOS  by Dr. John Nestler, MD, professor of Endocrinology in
Virginia...

Diagnosing problems - each woman may exhibit a different combination of
symptoms or no symptoms at all, etc....
- Experts now believe to be at the root of PCOS, is an inability to respond
properly to insulin followed by;
.............- high Cholesterol
.............- obesity
.............- high blood pressure
.............- risk of Diabetes
.............- heart disease

*** If women have regular periods and normal levels of testosterone, they DO
NOT have PCOS... Per Dr. Nestler...***

Research shows LOCAH can bring PCOS on... Further research shows women will experience more or less symptoms of PCOS & LOCAH through their lives...

LOCAH  Sites
http://www.members4.boardhost.com/LOCAH/
- LOCAH forum for info and participating in...


http://www.cahsupportforum.com/locah.html
- CAH Support Forum, extensive info on CAH and LOCAH...


www.caresfoundation.org
- Care Foundation

PCOS Sites
www.ivf-et.com/pcosstate
- The Center for Applied Reproductive Science


www.soulcysters.com ... *  www.soulcysters.net  *
- PCOS women, information, forum, resources, etc... Worth joining!


www.pcosupport.org
- PCOS Association with research, information, resources, etc...

www.pcolist.org

- PCOS Association's email forum lists... 1st hand experiences... YOU join, be yourself, post questions and get honest answers, in return learning so much!



http://www.inciid.org/faq.php?cat=infertility101&id=2

- International Council on Infertility Information Dissemination...
Exceptionally informative site with a list of more sites...


Quick FAQ Sheet
- PCOS Informational Center...
www.pcos.itgo.com

www.PCOSCoach.com  -  Excellent site for info, news, books, links...

Thyroid Site
http://thyroid.about.com/cs/hypothyroidism/a/checklist.htm

Androgen Site
http://wwwthorne.com/townsend/mar/wns_update.html
- Info on Androgens and women's health ( worth reading)

Notes from research
PCOS is only in women at present... (research on men is going on)... But,
LOCAH effects women and men...

My advice to all women having any of these symptoms
- Print this list out, check off your symptoms and show your doctor... NEVER
take "NO" for an answer... Most likely he or she does not know about PCOS &
LOCAH... Or have very little knowledge of both...
- Medical history, etc... plays a huge part in your diagnosis ...
- Push to see a Reproductive Endocrinologist familiar with PCOS & LOCAH...
       - Call Penn State University (PCOS research dept) for a referral...
Phone #: 800.585.9585...

OR
       - Call the Cedars Sinai PCOS Research Center for a referral... Phone #: 310.423.9964...


* Realize... PCOS & LOCAH are rare diseases/disorders...They are listed with
the Rare Disease website...http://www.rarediseases.org

PCOS & LOCAH TESTS

LOCAH
- Along with symptoms
    - ACTH Test - it is a blood test... Be sure blood is drawn 3x's!

PCOS...................................................DONE/date
- Along with symptoms                        
....- Ultrasound.....................................__/___________
....- Total Testosterone..........................__/___________
....- 17 OHPS........................................__/____________
....- LH..................................................__/____________
....- hormonal testing............................__/____________
....- Calcium..........................................__/_____________
....- Iron.................................................__/_____________
....- Diabetes..........................................__/_____________
....- Cholesterol......................................__/_____________
....- Tryglycerides...................................__/_____________
....- Free Glucose...................................__/_____________
....- Insulin..............................................__/_____________
....- IL-6..................................................__/_____________
* Your doctor may want more...
.....- PCOS - Thyroid Disorder and Cushings Disease need ruled out...

* READ your test results !!! Keep copies of all your tests, doctor visit
notes/charts, etc...  You will see a pattern and be able to gain info and
insight from forums on PCOS & LOCAH from it...

Test Results are explained here:
http://www.fertilityplus.org/faq/hormonelevels.html
- Fertility Plus Organization... Pregnancy tests are explained also....

AND
http://www.labtestsonline.org/index.html
- Lab Tests Online...Public resource on clinical lab testing...

Conversion Table for Blood Glucose Monitoring:
http://www.joslin.harvard.edu/education/library/conversiontable.shtml
- Joslin Diabetes Center (Harvard Education)

Guess what?
YOU end up having to educate your doctor(s).... I quess the price paid for
rare disorders, syndromes, etc...

I have personally gathered all this information and more for my own quest in
being diagnosed with PCOS & LOCAH...
- I hope the info will help you or someone you know...

Delphi Forums... Use link below for online symptoms list...
http://forums.delphiforums.com/n/main.asp?webtag=medical&msg=41530.1&
find=Search  
- Free to join and well worth surfing the forums...

Sincerely,
Frisky Filly
San Diego, California ... Now in New Jersey

* You do not have to have a polycystic ovary to be diagnosed with PCOS…
* Ultrasounds are not necessary in diagnosing PCOS…
* PCOS is diagnosed from you having one or more symptoms…This is due to PCOS being a syndrome…
* Syndrome O – now exists for women without cysts…
* Syndrome X – is the male version of our hormone imbalance…
- This syndrome has been known of for years in men!
- My hubby has most of the same symptoms, problems I do… (minus female things)

TESTS for PCOS
 
PCOS - Polycystic Ovary Syndrome

The list of tests below are compiled from research, PCOS ladies and doctors...
* PCOS ladies have experienced needing these tests because their doctors do not know how much PCOS effects the body...

* Important:
-  For accurate results be BCP FREE for 2 solid months...
-  Rule out Cushings and Thyroid problems...

Tests To Request:

CMP/Basic Metabolic Panel
Glucose^....Urea Nitrogen (BUN)....Creatine....BUN/Creatine Ratio....Sodium....Potassium...Chloride....Carbon Dioxide...Calcium*....

Lipid Panel
Triglycerides....Total Cholesterol....HDL Cholesterol....LDL Cholesterol....Chol/HDLC Ratio....

Hepatic Function Panel
Total Protein....Albumin....Globulin....Albumin/Globulin Ratio....Total Bilirubin....Direct Bilirubin....Indirect Bilirubin....Alkaline  Phosphate ....AST....ALT...ALP....

Insulin^....T3...T4....TSH^....17 OHPS....17 PO ....DHEA-S^....FSH^.... LH^....Prolactin^....Hypothyroidism^....

FYI:  Serum Insulin Level test (KEY) - ADD it to your needed test list... Your level must be below 11... IF 12 and higher you will NOT LOSE weight!  The only way to lower this level is exercise... * I just learned this from Susan in PCOS Pals Yahoo Group, 4/07*
 
FreeTestosterone^....Total Testosterone^....SHBG^....

Iron*....Magnesium*....IL-6'*....Ferritin*....B12*....Estrogens....

* = tests you need to request...
^ = tests needed for a suspected hormone disorder...
'  = * special test done to warn of 3 things PCOS (1st 3 listed) can lead to....
IL-6 is Interleukin - 6 ....I found this deep in heart disease research...
      ( Heart Disease....Diabetes....Osteoporosis....frailty....certain cancers )

Blood Tests Needed Before Prescribing Metformin/Glucophage:

LH....FSH....E2 (Estradiol)....DHEA-S....T....17 OHP....Prolactin....TSH....
BUN....CR....AST....ALT....LDH....Glucose (fasting)....

FYI:  Serum Insulin Level test - ADD this to your list...Your level must be 11 and under inorder to lose weight... If it's over 12, you will not be able to lose!  The key to lowering the serum level is exercise...  Ultrasounds To Have:     Abdominal (regular one) and a TVS - TransVaginal   * These have not been deemed necessary to diagnose PCOS *
FACT:  Ultrasounds are not 100% accurate...Per the manufacturer, i called them directly in 2003...     Lab Tests Can Be Interpreted Here:    http://www.fertilityplus.org/faq/hormonelevels.html  - Fertility Plus Organization... Pregnancy tests are explained also....
AND  http://www.labtestsonline.org/index.html   - Lab Tests Online...Public resource on clinical lab testing...    Conversion Table for Blood Glucose Monitoring:  http://www.joslin.harvard.edu/education/library/conversiontable.shtml  - Joslin Diabetes Center (Harvard Education)    Ladies  This is a strong guide of tests you should have done at some point... Your doctor may take less or more, your insurance may not cover some... If your doctor requests more, ask WHY... If your insurance does not cover them, ask WHY and have your doctor explain why the need in writing to them...     I hope this list further helps you in proper testing to give you a precise view of where you stand with your body in having PCOS... You are then able to know what needs done to make the wrongs right....  -  These tests sure showed me what's what ...
FYI:  YOU have to know about PCOS, i can't stress it enough...YOU also have to know all the treatments available to you... Treatment is a HIT & MISS scenario... YOU are in control with PCOS over your doctors... FACT: 2004 the AACE www.aace.com made PCOS a priority to doctors... 
www.aace.com/pub/pdf/guidelines/PCOSpositionstatement.pdf ... Your life is at stake with PCOS, literally! I wish you all well, Frisky Filly ... Christie
E-mail: friskyfilly6@yahoo.com  - Feel free to email me, put PCOS Blog in Subject line....
Blog:  http://pcoslady.blogdrive.com/
  POSTING NOTE:  Reposted due to disappearing and i get errors on every post, plus i have to double space sites so they are easy to read... Sorry, it's the blog site... Christie

Posted at 09:07 am by ChristiewPCOS
 

 
Wednesday, March 28, 2007
PCOS - Symptoms, Websites, Tests...
PCOS
Polycystic Ovary Syndrome
 
  1. traditional PCOS -- anovulatory, increased androgens, no insulin resistance
  2. endocrine syndrome X -- anovulatory, increased androgens, insulin resistance or type 2 diabetes
  3. non-traditional PCOS --anovulatory, normal androgens, obese, insulin resistant or type 2 diabetes
  4. non-traditional PCOS -- ovulatory, increased androgens, mild insulin resistance
  5. idiopathic hirsutism -- ovulatory, increased androgens, no insulin resistance
PCOS & LOCAH Symptoms w/Websites

This list of symptoms and websites are beneficial for you to read over...Some of you may have the symptoms or know a lady that does...A quick indicator is those of us that carry their extra weight in the tummy and chin... (Thin women can have PCOS &/or LOCAH, too)
READ ON...

Symptoms for PCOS and LOCAH compiled from sites, forums, groups, research, etc...

PCOS - Polycystic Ovary Syndrome
LOCAH - Late Onset Congenital Adrenal Hyperplasia

SYMPTOMS.................PCOS.........*.LOCAH.*
---------------------------------------------------------------------
..............................pX = PCOS...... lX = LOCAH

* Periods *
- absent...............................pX........lX......__
- irregular.............................pX........lX......__
- heavy, clots-golf balls......pX.................__
* Pregnancy *
- infertility.............................pX.......lX......__
- trouble getting...................pX.......lX......__
- miscarriages......................pX.......lX......__
* Hair *
- excessive...........................pX.......lX......__
- thinning...............................pX.......lX......__
- facial....................................pX......lX......__
- pubic - early...................................lX......__
- zebra line- chest to belly...............lX......__
- oily hair................................pX......lX......__
* Weight *
- obesity.................................pX......lX.....__
- hard to lose.........................pX...............__
- gain easy.............................pX...............__
- IR - Insulin Resistance.......pX......lX......__
- Metabolic Syndrome...........pX.....lX......__
- fluid retention.................................lX......__
* Skin *
- acne......................................pX.....lX......__
- dark skin patches.................pX..............__
     (ex: nape of neck) 
- skin tags...............................pX...............__
- jaundice (yellowish)........................lX......__
- oily skin (excessive)............pX......lX......__
- dry scalp...............................pX.....lX......__
* Cysts *
- ovaries..................................pX...............__
- liver tumors.....................................lX......__
- liver cancer.....................................lX......__
- kidney tumors.................................lX......__
* Diabetes *
- Type II (2).............................pX.....lX......__
- Gestational............................pX.....lX......__
* Cholesterol *
- high........................................pX.....lX......__
- high LDL..........................................lX......__
- low HDL...........................................lX......__
* Triglycerides *
- high........................................pX......lX......__
* Blood Pressure *
- high.........................................pX.....lX......__
* Misc.... *
- Hypertension..........................pX.....lX......__
- Stress.....................................pX.....lX......__
- Anxiety....................................pX.....lX......__
- Panic Attacks...................................lX......__
- Moodiness..............................pX.....lX....__
- severe...............................................lX......__
- Heart Disease.........................pX.....lX......__
- Hormone Disorder..................pX.....lX......__
- Neurological stuff..............................lX......__
- Depression..............................pX.....lX......__
- Hyperinsulinemia.....................pX..............__
- excess Androgens............................lX......__
- Atherosclerosis.................................lX......__
- Hormone Imbalances..............pX.....lX......__
- low sex drive.............................pX.....lX......__
- 21 Hydroxylase
    - deficiency.......................................lX......__
- 17 OHPS                                             
    - high - over 30 NG/DL.....................lX......__
- Total Testosterone, NG/DL
    - 59 is high, 40 is elevated...............lX......__
- enlarged clitoris..................................lX......__
- deepened voice..................................lX......__
- Endometrial Cancer...................pX....lX......__
- Endometrial Hyperplasia....................lX......__
- Sleep Apnea............................pX......lX......__
- Restless Leg Syndrome.........pX…..IX…...__
- Iron low.....................................pX......lX......__
- Calcium low..............................pX......lX......__
- low B12.....................................pX......lX......__
- Ferritin level low........................pX......lX......__
   *add iron if under 100-150
* Menopausal *
- estrogen loss............................pX.......lX......__
- hot flashes.................................pX................__
- skin thinning...............................pX................__
- elevated sensitivity....................pX................__
- Cardio Disease..........................pX................__
- effects on bladder
    - negative..................................pX................__
- effects on vagina area
    - negative...................................pX................__
- reduction in bone density...........pX................__
- Androgen levels high..................pX................__
- poor lipid levels...........................pX................__
- Hormone Imbalances.................pX........lX......__

Important info found in research as well...Research is ongoing:
- PCOS is hereditary…
- Symptoms are being added constantly from research findings...
........RLS - Restless Leg Syndrome was recenly added...

Birth Control Pills lower all your hormones... If some are still high, you could have PCOS &/or LOCAH... (per a research facility manager)

2/98 Cosmopolitan Magazine article on PCOS  by Dr. John Nestler, MD, professor of Endocrinology in Virginia ...

Diagnosing problems - each woman may exhibit a different combination of symptoms or no symptoms at all, etc....
- Experts now believe to be at the root of PCOS, is an inability to respond properly to insulin followed by;
.............- high Cholesterol
.............- obesity
.............- high blood pressure
.............- risk of Diabetes
.............- heart disease

*** If women have regular periods and normal levels of testosterone, they DO NOT have PCOS... Per Dr. Nestler...***

Research shows LOCAH can bring PCOS on... Further research shows women will experience more or less symptoms of PCOS & LOCAH through their lives...

LOCAH  Sites
http://www.members4.boardhost.com/LOCAH/

- LOCAH forum for info and participating in...

http://www.cahsupportforum.com/locah.html

- CAH Support Forum, extensive info on CAH and LOCAH...

www.caresfoundation.org

- Care Foundation

PCOS Sites
www.ivf-et.com/pcosstate
- The Center for Applied Reproductive Science...

www.soulcysters.com

- PCOS women, information, forum, resources, etc...
- PCOS organization with research, information, resources, etc... 
 
- *** (free to sign up – 1st hand experiences) ***                                                         
- You will relate to almost every woman in here some way...
- Excellent place to be yourself, post questions and get honest answers and ideas...
- Part of the PCOS organization with an email forum set up with categories...

http://www.inciid.org/faq/pcos.html
- International Council on Infertility Information Dissemination...
*Exceptionally informative site with a list of more sites..
 
FAQ's on PCOS - http://pcos.itgo.com  at a glance...
 
-  Great site for information, news, books, links, etc... 
  
Androgen Site
http://wwwthorne.com/townsend/mar/wns_update.html
- Info on Androgens and women's health ( worth reading)

Notes from research
PCOS is only in women at present... (research on men is going on)... Men do get Syndrome X...But, LOCAH effects women and men...
- Research has proven PCOS is hereditary...

My advice to all women having any of these symptoms;
- Print this list out, check off your symptoms and show your doctor... NEVER take "NO" for an answer...  Most likely he or she does not know about PCOS & LOCAH...  Or have very little knowledge of both...
- Medical history, etc... plays a huge part in your diagnosis ...
- Push to see a Reproductive Endocrinologist familiar with PCOS & LOCAH...
       - Call Penn State University (PCOS research dept) for a referral... Phone #: 800.585.9585...
       - Call the Cedars Sinai PCOS Research Center for a referral... Phone #: 310.423.9964...
* Realize... PCOS & LOCAH are rare diseases/disorders... They are listed with the Rare Disease website...
http://www.rarediseases.org

PCOS & LOCAH Tests:

LOCAH
- Along with symptoms
    - ACTH Test - it is a blood test... Be sure blood is drawn 3x's!

PCOS...................................................DONE/date
- Along with symptoms                        
....- Ultrasound.....................................__/___________
....- Total Testosterone.......................__/___________
....- 17 OHPS.......................................__/___________
....- LH...................................................__/___________
....- hormonal testing............................__/___________
....- Calcium..........................................__/___________
....- Iron.................................................__/___________
....- Diabetes........................................__/___________
....- Cholesterol....................................__/___________
....- Tryglycerides.................................__/___________
....- Free Glucose................................__/____________
....- Insulin............................................__/____________
....- IL-6................................................__/____________
* Your doctor may want more...
.....- PCOS - Thyroid Disorder and Cushings Disease need ruled out...

* READ your test results !!! Keep copies of all your tests, doctor visit
notes/charts, etc...  You will see a pattern and be able to gain info and
insight from forums on PCOS & LOCAH from it...

Test Results are explained here:
http://www.fertilityplus.org/faq/hormonelevels.html
- Fertility Plus Organization... Pregnancy tests are explained also....
http://www.labtestsonline.org/index.html
- Lab Tests Online...Public resource on clinical lab testing...

Conversion Table for Blood Glucose Monitoring:
"http://www.joslin.harvard.edu/education/library/conversiontable.shtml">
http://www.joslin.harvard.edu/education/library/conversiontable.shtml
- Joslin Diabetes Center (Harvard Education)

Guess what?
YOU end up having to educate your doctor(s).... I quess the price paid for rare disorders, syndroms, etc...

I have personally gathered all this information and more for my own quest in being diagnosed with PCOS & LOCAH...
- I hope the info will help you or someone you know... 
- Treatment is a HIT or MISS for each woman...FACT:  No one thing works for everyone...We are all individuals with PCOS...                                         
* YOU could be saving their life by passing the PCOS word on...*

Delphi Forums... Use link below for online symptoms list...
http://forums.delphiforums.com/n/main.asp?webtag=medical&msg=41530.1&<br>find=Search
- Free to join and well worth surfing the forums...
 
PCOS - Polycystic Ovary Syndrome Tests
 
The list of tests below are compiled from research, PCOS ladies and doctors...
* PCOS ladies have experienced needing these tests because their doctors do not know how much PCOS effects the body... 
 
* Important:
-  For accurate results be BCP FREE for 2 solid months...
-  Rule out Cushings and Thyroid problems...
 
Tests To Request:
 
CMP/Basic Metabolic Panel
Glucose^....Urea Nitrogen (BUN)....Creatine....BUN/Creatine Ratio....Sodium....Potassium...Chloride....Carbon Dioxide...Calcium*....
 
FYI:  Serum Insulin Level test - The level must be 11 or lower inorder for us to lose weight!  ADD it to your test list... Doctors rarely ever include it... The number/test is a major "KEY" to losing weight...
- If over 12, you will not lose, guaranteed! 
 
Lipid Panel
Triglycerides....Total Cholesterol....HDL Cholesterol....LDL Cholesterol....Chol/HDLC Ratio....
 
Hepatic Function Panel
Total Protein....Albumin....Globulin....Albumin/Globulin Ratio....Total Bilirubin....Direct Bilirubin....Indirect Bilirubin....Alkaline  Phosphate ....AST....ALT...ALP....
 
Insulin^....T3...T4....TSH^....17 OHPS....17 PO ....DHEA-S^....FSH^.... LH^....Prolactin^....Hypothyroidism^....
 
FreeTestosterone^....Total Testosterone^....SHBG^....
 Iron*....Magnesium*....IL-6'*....Ferritin*....B12*.... Estrogens....
 
* = tests you need to request...
^ = tests needed for a suspected hormone disorder...
'  = * special test done to warn of 3 things PCOS (1st 3 listed) can lead to....IL-6 is Interleukin - 6 ....I found this deep in heart disease research...
      ( Heart Disease....Diabetes....Osteoporosis....frailty.... certain cancers )
 
Blood Tests Needed Before Prescribing Metformin/Glucophage:
 
LH....FSH....E2 (Estradiol)....DHEA-S....T....17 OHP.... Prolactin....TSH....BUN....CR....AST....ALT....LDH....
Glucose (fasting)....
 
Ultrasounds To Have:
 
Abdominal (regular one) and a TVS - TransVaginal
* These have not been deemed necessary to diagnose PCOS *
 
Lab Tests Can Be Interpreted Here:
 
http://www.fertilityplus.org/faq/hormonelevels.html
- Fertility Plus Organization... Pregnancy tests are explained also....
http://www.labtestsonline.org/index.html
- Lab Tests Online...Public resource on clinical lab testing...

Conversion Table for Blood Glucose Monitoring:
"http://www.joslin.harvard.edu/education/library/conversiontable.shtml">
http://www.joslin.harvard.edu/education/library/conversiontable.shtml
- Joslin Diabetes Center (Harvard Education)

Ladies
This is a strong guide of tests you should have done at some point... Your doctor may take less or more, your insurance may not cover some... If your doctor requests more, ask WHY... If your insurance does not cover them, ask WHY and have your doctor explain why the need in writing to them...
 
I hope this list further helps you in proper testing to give you a precise view of where you stand with your body in having PCOS... You are then able to know what needs done to make the wrongs right....
-  These tests sure showed me what's what ...
…….1/07 I educated the doctors and nurses on PCOS while hospitalized…
 
I wish you all well,
Christie
San Diego, California
- now in New Jersey

Posted at 09:11 pm by ChristiewPCOS
 

Hypothyroidism Risk/Symptoms Checklist

******************************

http://thyroid.about.com/cs/hypothyroidism/a/checklist.htm

Hypothyroidism Risk/Symptoms Checklist

HELP IN DIAGNOSING AND FINETUNING:

You can use this checklist to bring to your doctor to help aid in getting a proper diagnosis of hypothyroidism, or as background information in your discussions regarding finetuning your dosage so you are at the optimal TSH level for your own level of wellness.

My risk factors for hypothyroidism include:

____ I have a family history of thyroid disease
____ I have had my thyroid "monitored" in the past to watch for changes
____ I had a previous diagnosis of goiters/nodules
____ I currently have a goiter
____ I was treated for hypothyroidism in the past
____ I had post-partum thyroiditis in the past
____ I had a temporary thyroiditis in the past
____ I have another autoimmune disease
____ I have had a baby in the past nine months
____ I have a history of miscarriage
____ I have had part/all of my thyroid removed due to cancer
____ I have had part/all of my thyroid removed due to nodules
____ I have had part/all of my thyroid removed due to Graves' Disease/hyperthyroidism
____ I have had radioactive iodine due to Graves' Disease/hyperthyroidism
____ I have had anti-thyroid drugs due to Graves' Disease/hyperthyroidism

I have the following symptoms of hypothyroidism, as detailed by the Merck Manual, the American Association of Clinical Endocrinologists, and the Thyroid Foundation of America

____ I am gaining weight inappropriately
____ I'm unable to lose weight with diet/exercise
____ I am constipated, sometimes severely
____ I have hypothermia/low body temperature (I feel cold when others feel hot, I need extra sweaters, etc.)
____ I feel fatigued, exhausted
____ Feeling run down, sluggish, lethargic
____ My hair is coarse and dry, breaking, brittle, falling out
____ My skin is coarse, dry, scaly, and thick
____ I have a hoarse or gravely voice
____ I have puffiness and swelling around the eyes and face
____ I have pains, aches in joints, hands and feet
____ I have developed carpal-tunnel syndrome, or it's getting worse
____ I am having irregular menstrual cycles (longer, or heavier, or more frequent)
____ I am having trouble conceiving a baby
____ I feel depressed
____ I feel restless
____ My moods change easily
____ I have feelings of worthlessness
____ I have difficulty concentrating
____ I have more feelings of sadness
____ I seem to be losing interest in normal daily activities
____ I'm more forgetful lately

I also have the following additional symptoms, which have been reported more frequently in people with hypothyroidism:

____ My hair is falling out
____ I can't seem to remember things
____ I have no sex drive
____ I am getting more frequent infections, that last longer
____ I'm snoring more lately
____ I have/may have sleep apnea
____ I feel shortness of breath and tightness in the chest
____ I feel the need to yawn to get oxygen
____ My eyes feel gritty and dry
____ My eyes feel sensitive to light
____ My eyes get jumpy/tics in eyes, which makes me dizzy/vertigo and have headaches
____ I have strange feelings in neck or throat
____ I have tinnitus (ringing in ears)
____ I get recurrent sinus infections
____ I have vertigo
____ I feel some lightheadedness
____ I have severe menstrual cramps
Updated: December 13, 2003

Posted at 10:32 pm by ChristiewPCOS
 

5 Things to AVOID in Your Diet...

 

October 11, 2006

Oprah Show
By Dr Oz & Dr Roizen

Complaint: Overweight, rundown and exhausted...
Problem: Her *diet and little exercise...

Fact: Look outside their life to pinpoint the problems...
Fact: 2 weeks of eating right WILL shift your life curve...
BUT, eating right then eating bad for 2 weeks will change that
life curve, too...
Fact: The biggest changes are outside of you!

5 Things to AVOID

1. sugar...
2. high fructose corn syrup - ages arteries and hurts your immune
system...
3. hydrogenated oil & partially hydrogenated - leads to heart disease...
4. enriched (flour, etc...) - They took it out and put the bad back in...
5. salt

* Olive Oil improves arteries!
- Sugar & water drinks are BAD!
* Eat foods from the earth and nature!
* Air popped popcorn is good for you...

Yesterdays Oprah Show was interesting, too!
Monday is Dr Oz Day...He covered those embarrassing questions...
Dr Lisa Masterson from Cedars Sinai in LA, CA said;
1. If your monthly clots are bigger than an egg, see your doctor...
2. Take Motrin 2 days before your period to lower the harsh cramping...


Posted at 10:35 pm by ChristiewPCOS
 

 
Friday, March 30, 2007
PCOS.Baby.Health.Herbs.More...Sites

 

PCOS ... BABY ... HEALTH ... HERBS ... MORE ... SITES

http://kidshealth.org/teen/index.html

http://loriwells0.tripod.com/

http://members.cox.net/writergirlks/PCOS%20today%20v1issue1.pdf

http://members.tripod.com/LILCOUNTRYHONEY/pcosstory/index.htm

http://msnbc.com/news/TODAYINFERTILITY_Front.asp?0cl=c2

http://nutrition.about.com/library/weekly/aa021100a.htm

http://onespiritproject.com/links/resourcesforwomen.html

RESOURCE SITES IN VARIOUS TOPICS:

http://onna.org/information/herbs.html

http://onna.org/links/index.html

http://ovarian-cysts-pcos.com/

http://preconception.com/newsline.php

http://search.about.com/fullsearch.htm?terms=pregnancy%20symptoms

http://search.aol.com/cat.adp?id=7818&layer=&from=subcats

http://search.aol.com/dirsearch.adp?start=&from=topsearchbox.%2Findex.adp&query=pcos+

http://store.babycenter.com/?sourceid=00393670416470544990&bfinfo=ebs32750340sbe

http://story.news.yahoo.com/news?tmpl=story&cid=564&ncid=564&e=4&u=/nm/20030708/ts_nm/health_ovulation_dc_1

http://womencentral.msn.com/

http://womenshealth.about.com/library/treatments/bltreatments_pcos.htm

http://womenshealth.about.com/library/weekly/aa060600a.htm

http://womenshealth.about.com/msubpcos.htm

http://www.2womenshealth.co.uk/10-12.htm

http://www.4woman.gov/faq/infertility.htm

http://www.4woman.gov/faq/pcos.htm

http://www.advancedfertility.com/anovulat.htm

http://www.advancedfertility.com/inducovu.htm

http://www.americaninfertility.org/iboards/pcos/

http://www.babymed.com/docs/listing.asp?CategoryID=252

http://www.babyzone.com/

http://www.babyzone.com/preconception/herbs/

http://www.bugsbest.com/exerbene.htm

http://www.cdc.gov/health/womensmenu.htm

http://www.childofmydreams.com/



Posted at 07:48 pm by ChristiewPCOS
 

PCOS.ENDOMETRIOSIS.INFERTILITY.MEDICAL.LINKS

 

PCOS...ENDOMETRIOSIS...INFERTILITY...DIETS...MEDICAL...LINKS


http://www.arcamax.com -
http://www.arcamax.com
http://www.arcamax.com -
http://www.arcamax.com
http://www.aussiecysters.org/


EDiets -  http://www.ediets.com -
http://www.ediets.com

Mayoclinics - http://www.mayoclinic.com

Pcos and Endometrious - http://mail.inciid.org/phpdig/search.php?site=0&path=&result_page=search.php&query_string=Endometriosis&x=10&y=3

PCOS Newsletter -  http://members.cox.net/writergirlks Soul Cysters - www.soulcysters.com - Soulcysters.com


LINKS

PCOS:
http://health.discovery.com/centers...pcos/facts.html
http://search.about.com/fullsearch.htm?TopNode=%2F&terms=pcos
http://www.pcostrategies.org/
http://www.medifocus.com/guide_detail.asp?gid=ND014&a=a&assoc=Google&keyword=polycysticovary
http://www.obgynworld.com/international/authfiles/search.asp?scope=Entire+Site&QU=pcos
http://www.babyzone.com/features/content/display.asp?contentid=1275
http://p068.ezboard.com/bbabymine
http://p080.ezboard.com/bkickbuttwithloofah
http://p090.ezboard.com/bpcoschristians
http://forums.obgyn.net/pcos/PCOS.0003/0884.html
http://search.familydoctor.org/htdigsearch/htsearch?config=familydoctor_kidshealth&words=pcos
http://familydoctor.org/620.xml
http://pcos.insulitelabs.com/
http://www.cyst101.com/
http://www.findarticles.com/p/search?tb=art&qt=polycystic+ovarian+syndrome&qf=all
http://www.labtestsonline.org/understanding/conditions/pcos-3.html
http://www.sensible-alternative.com.au/polycystic_ovarian_syndrome.html
[B]http://search.ivillage.co.uk/search/ivillageuk?q=pcos&filter=p&restrict=iVillage_UK&start=10  http://search.ivillage.co.uk/search/ivillageuk?q=endometriosis&filter=p&restrict=iVillage_UK

ENDOMETRIOSIS:

http://health.discovery.com/centers/womens/endometriosis/endometriosis.html
http://search.about.com/fullsearch.htm?terms=Endometriosis
http://www.endometriosis-symptoms.org/
http://www.healthy.net/scr/condition.asp?ConditionId=112
http://familydoctor.org/476.xml#6
http://www.obgynworld.com/international/resources/magowan/hc005122.asp
http://www.goodbyeendo.com/
http://www.findarticles.com/p/search?qt=Endometriosis&tb=art&qf=all
http://search.atomz.com/search/?sp-q=endometrious&sp-a=sp1001878c&testlist=TESTS&conditions=CONDITIONS%2FDISEASES&wellness=SCREENING
http://www.chemmart.com.au/HealthTopic.asp?ID=33

FERTILITY:
http://www.findarticles.com/p/search?qt=fertility&tb=art&qf=all

INFERTILITY: www.ein.org
http://search.familydoctor.org/htdigsearch/htsearch?config=familydoctor_kidshealth&words=Infertility&x=10&y=13[/URL] http://search.atomz.com/search/?sp-a=sp1001878c&sp-f=ISO-8859-1&sp-q=Infertility&conditions=CONDITIONS%2FDISEASES&testlist=TESTS&wellness=SCREENING MENSTRUATION:
http://www.menstruation.com.au/index.html

ACNE:
http://www.findarticles.com/p/search?qt=acne&tb=art&qf=all

WEIGHT ISSUES:
http://www.findarticles.com/p/search?qt=Weight+Issues&tb=art&qf=all

HAIR LOSS:
http://www.findarticles.com/p/search?qt=Hair+loss&tb=art&qf=all

SKIN TAGS:
http://www.findarticles.com/p/search?qt=skin+tags&tb=art&qf=all

DEPRESSION:
http://www.findarticles.com/p/search?qt=Depression&tb=art&qf=all

IVF:
http://www.findarticles.com/p/search?qt=IVF&tb=art&qf=all
http://search.atomz.com/search/?sp-q=ivf&sp-a=sp1001878c&testlist=TESTS&conditions=CONDITIONS%2FDISEASES&wellness=SCREENING
http://www.ivf.com/pcos.html

CLOMID:
http://infertility.about.com/od/clomid/a/clomidsideeffct.htm


Posted at 08:19 pm by ChristiewPCOS
 

PCOS.FORUMS.GROUPS.MORE

 

PCOS...FORUMS...GROUPS...SITES...PLUS MORE


http://atkinscenter.com/Archive/2002/1/11-252634.html
 
http://content.health.msn.com/content/article/24/1819_50473?
 
http://cpwagner.freeyellow.com/papers.html
 
http://dir.yahoo.com/Health/Diseases_and_Conditions/Polycystic_Ovarian_Sydrome__PCOS_/
 
http://directory.google.com/Top/Health/Conditions_and_Diseases/Endocrine_Disorders/Gonads/Polycystic_Ovarian_Syndrome/
 
http://groups.yahoo.com/group/supportpcos/
 
http://members.truepath.com/bgadland/pcos.html
 
http://pages.ivillage.com/montreatgrad98/PCOS.html
 
http://www.childofmydreams.com/infertility/diag_treat/diagnosis/addlinfo/abc_of_pcos.html
 
http://www.drkurtz.com/PCOS.htm
 
http://www.drspock.com/article/0,1510,8254,00.html
 
http://www.gendercenter.org/releases.htm
 
http://www.gnc.com/health_notes/newswire/default.asp?article_id=2&doc_id=27
 
http://www.myhealthsense.com/poly.html
 
http://www.niehs.nih.gov/dert/pcos.htm
 
http://www.ovarian-cysts-pcos.com/pearls.html
 
http://www.pcolist.org/pipermail/pcosrecord/2001-September/000010.html
 
http://www.pcosupport.org/medical/thatcher1.php
 
http://www.savvyhealth.com/db/newsview.asp?docid=4824
 
http://www.soulcysters.com/research_articles.html
 
http://www.storknet.com/experts/infertility/exst12.htm
 
http://www.technomom.com/health/pcos.html
 
http://www.verity-pcos.org.uk/  
 
http://www.womenoffaith.com/health/features/PCOS.htm


Baby - http://www.whatbabyneeds.com/site_map/index9.shtml
 
Crossings, a christian book site -
http://www.crossings.com/doc/full_site_enrollment/fse_homepage.jhtml;jsessionid=0XNITW2A0YYESCWKAQOCFFA
 
Depression -
http://content.health.msn.com/content/pages/7/1663_51929?z=8200_00000_5000_gd_02
 
Discount Fertililty Drugs -
http://infertility.about.com/gi/dynamic/offsite.htm?site=http%3A%2F%2Fwww.fertilityplus.org%2Ffaq%2Fdrugs.html
 
Graphic -
http://www.ribbonomatic.com/matic/graphics/89979.html
 
http://65.54.246.250/cgi-bin/linkrd?_lang=EN&lah=0e3bf0bb9b05839dd79f0d66ee0d7485&lat=1074977166&hm___action=http%3a%2f%2fglclk%2eabout%2ecom%2f%3fzi%3d8%2f1H2y
 
http://bbs.babycenter.com/board/preconception/fertilityproblems/11334
 
http://boards.multicity.com/servlet/BoardView?boardid=2006648590&domainid=0
 
http://centerforpcos.bsd.uchicago.edu/
 
http://centerforpcos.bsd.uchicago.edu/Treatment_options/treatment_options.html

 http://content.health.msn.com/search/search_results?query=pcos&filter=msn_library_filter&context=%5Bcontext_search_context%5D&x=13&y=10&submit1=Go
 
http://fertilityproregistry.com/
 
http://forums.obgyn.net/pcos/PCOS.0210/0289.html
 
http://groups.msn.com/ChickenSoupforthePCOSSouls/home.htm
 
http://groups.msn.com/DaringtoDreamAdayinthelivesofPCOSsufferers/home.htm
 
http://groups.msn.com/DealingwithPCOSandgettinghealthier/home.htm
 
http://groups.msn.com/PCOSAwareness/home.htm
 
http://groups.msn.com/PCOSTTC/home.htm
 
http://groups.msn.com/SerenityNorthernPolycysticOvarianSyndrome/_whatsnew.msnw
 
http://groups.msn.com/TTCwithPCOS/home.htm
 
http://health.groups.yahoo.com/group/PcosWomenSupportGroup/
 
http://health.groups.yahoo.com/group/supportpcos/
 
http://health.msn.com/
 
http://health.yahoo.com/health/encyclopedia/000369/0.html
 
http://infertility.about.com/?once=true
 
http://infertility.about.com/cs/infertility101/a/fertilitychart.htm
 
http://infertility.about.com/cs/infertility101/a/infertilityfaq_3.htm
 
http://infertility.about.com/cs/pcos/
 
http://infertility.about.com/library/quiz/clomid/blclomidquiz.htm

http://infertility.about.com/od/reproductionbasics1/a/femaleorgasm.htm 
http://kidshealth.org/teen/diseases_conditions/sexual_health/pcos.html
 


Posted at 08:42 pm by ChristiewPCOS
 

 
Saturday, March 31, 2007
INSULIN RESISTANCE HOME TEST

 

INSULIN RESISTANCE HOME TEST:
 
If you answer yes to 3 or more, you are likely to have Insulin Resistance (IR):
 
1 ____/....  A family history of diabetes, overweight problems, abnormal cholesterol &/or triglycerides, heart disease, or stroke...
2 ____/....  Frequent cravings for sweet or salty, cruncy snack food...
3 ____/....  The need to eat often or eat excessive amounts of food...
4 ____/....  A difficult time losing weight even if you exercise or cut back on your food intake...
5 ____/....  A problem with weith gain even when eating small amounts of food...
6 ____/....  Weight gain mostly around your waist...
7 ____/....  Skin tags (small, painless, flappy skin growths) on your neck, chest, breasts, groin area, or underarms...
8 ____/....  A history of irregular menstrual periods, especially skipping months...
9 ____/....  High triglyceride levels...
10 ___/....  Low HDL cholesterol (the good type of cholesterol) levels, that is, lower than 35mg/dl...
11 ___/.... High LDL cholesterol (the bad type) levels, that is, higher than 130mg/dl...
12 ___/.... High or borderline high blood pressure-- even during pregnancy...
13 ___/.... The feelin that you are addicted to carbohydrates...
14 ___/.... The feeling that you have no will power when it comes to dieting...
15 ___/.... Jitteriness, difficulty thinking, headaches, or nausea that goes away when you eat...
16 ___/.... Hypoglycemia...
17 ___/.... Afternoon fatigue...
18 ___/.... Type II diabetes, borderline diabetes, or abnormal glucose tolerance tests-- even just during pregnancy...
19 ___/.... High uric acid or gout...
20 ___/.... History of having a blood clot in your legs, lungs, or brain...
21 ___/.... A doctor telling you that you need to eat less in order to lose weight, yet those close to you are amazed at how little you eat...
22 ___/.... The belief that you are at least thirty pounds overweight...
23 ___/.... A body mass index of 30 or higher...
24 ___/.... Native-American, Asian, African American, or Hispanic ancestry...
 
I took this test from the book "The Insulin Resistance Diet"
 
Advice: 
Copy and print this up, check off the things that pertain to you...
-  By all means take a copy to your doctor...
 
 

Posted at 03:47 pm by ChristiewPCOS
 

 
Wednesday, April 04, 2007
HOMEOPATHIC SITES...

 

Homeopathic Sites for PCOS

Posted by:  http://health.groups.yahoo.com/group/PCOSFrustration/

Hirsute Women & Homeopathy………
<
http://photos1.blogger.com/blogger/1985/2903/1600/101964098.jpg>
Hirsutism can be defined as excess facial and body hair growth in women.
This condition can be easily treated. For more information visit:
<
http://homeocare.blogspot.com/2006/07/hirsute-women-homeopathy.html>
* Sources of the Homeopathic medicine
<
http://homeocare.blogspot.com/2006/06/sources-of-homeopathic-medicine.h ml>
* Heart to Heart
<
http://homeocare.blogspot.com/2006/06/heart-to-heart.html>
* How to medicate Globules
<
http://homeocare.blogspot.com/2006/06/how-to-medicate-globules.html>
* Homeopathy & MENOPAUSE...
<
http://homeocare.blogspot.com/2006/06/homeopathy-menopause.html>
* Terms related to Pharmacy
<
http://homeocare.blogspot.com/2006/06/terms-related-to-pharmacy_05.html
* Preservation of Homeopathic medicine
<
http://homeocare.blogspot.com/2006/06/preservation-of-homeopathic-medicine.html>
* A case of asthma treated by Arsenic Alb
<
http://homeocare.blogspot.com/2006/05/case-of-asthma-treated-by-arsenic-alb.html>
* Contraception & Homeopathy
<
http://homeocare.blogspot.com/2006/05/contraception-homeopathy.html>
* Stay fit and COOL in summer
<
http://homeocare.blogspot.com/2006/05/stay-fit-and-cool-n-summer.html>
* Homeo smile ….
<
http://homeocare.blogspot.com/2006/05/homeo-smile.html>
* Travel SAFE with Homeopathy
<
http://homeocare.blogspot.com/2006/05/travel-safe-with-homeopathy.html>
* Old age can be very pleasurable
<
http://homeocare.blogspot.com/2006/05/old-age-can-be-very-pleasurable.html/>
* 12 Reasons to Use Homeopathy
<
http://homeocare.blogspot.com/2006/05/12-reasons-o-use-homeopath.html>
* An introduction to Homeopathy
<
http://homeocare.blogspot.com/2006/05/introduction-to-homeopathy.html>

 

 

 

 


 
 
 

 


Posted at 05:09 pm by ChristiewPCOS
 

 
Monday, April 09, 2007
Histerectomy & PCOS, my theory...

 

HYSTERECTOMY & PCOS

My Theory

http://forums.about.com/n/pfx/forum.aspx?tsn=1&nav=messages&webtag=ab-wmshealth3&tid=656

Posted 7/10/03 11:07 PM
From friskyfilly
To  All    

Hello Ladies,I have been reading through your posts... I have to pose questions
with PCOS... Polycystic Ovary Syndrome...PCOS creates HAVOC on your hormones...Have your doctors ever mentioned PCOS to you?...Have you ever had a complete hormone set of blood tests done?...  Do any of you have PCOS?.... PCOS will still be present after a Hysterectomy....My theory is if doctors knew about PCOS and tested the hormones 1st... I feel less Hyterectomies would be done... The hormones would be straightened out before the thought of a Hysterectomy was thought of.... I realize some cases have no choice but to operate...1989 I had a complex mass with "cysts"... Hysterectomy was next, if ithe mass did not disappear... It left me, yippie!  I was given 7 different drugs that week...I have PCOS and am curious on the questions I asked above....

Thankyou Ladies

Posted 7/17/03 11:22 PM
From Jennifer
To  friskyfilly    

I am a 31 year old women and I have PCOS. I was told 7 years ago by my family doctor that as long as I didn't want to have a baby not to worry about it. I went to my yearly check ups and paps came back neg. I had very irregular periods for 20 years. I had one child when I was 20. When I got a period this year that went on for 6 weeks I went to a OB/Gyn. She refered me to an Endrocronologist. He did do all the blood, Urine and 3 hour gloucose tests and determinded I did have PCOS. He put me on a hormone to stop my period and talked about birth control and a diabetic drug to manage my PCOS, he also recomended a nutristionalist for me to see. Well the hormone he gave me stopped the bleeding but a week later it started up very heavy and would not stop. I was admitted a week later for being very animic and given 2 units of blood. The doctor gave me high doses of estrogen to try and stop the bleeding but I ended up needing a D&C. Then I went on birth control. A week later he called and told me that a pathology report came back and the endro sample he sent came back a typical. He recomended a hysterectomy if I was done having children. I went ahead with the surgery. The day after the surgury the doctor came in and told me the test results on my uterous were Severly A typical. This was 4 weeks after the D&C. He said the next step would have been cancer. Women need to know about PCOS, I put it off for years and I was very lucky to catch it before it turned to cancer. If anyone suspects PCOS find a good Endrogronoligist and follow threw with it.

Jen

Posted 7/18/03 12:36 AM
From friskyfilly
To  Jennifer

Jen,

May I keep your story as a "reminder/note" to other women?  I am on a crusade to educate and inform women and doctors of PCOS & LOCAH... Your story is an extreme case that had a happy ending...Thankyou for confirming, if the PCOS was treated early on, maybe a Hysterectomy was not needed...

Christie

Posted 7/18/03 7:09 PM
From Jennifer
To  friskyfilly  

Christie
Please use it as you would like. I want as many people to know about this condition as possible. Anything else I can do please let me know.

Jennifer


Posted at 06:40 pm by ChristiewPCOS
 

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